I do not have a dog in the fight.
None of my four children has autism.
But when I got pregnant for the fourth time (yes, it was planned. No, it was not an accident), I couldn’t stop the desperate worry. I had three healthy children. How could I possibly be lucky enough to have a fourth?
That fourth child was born healthy, at home, unassisted, in November 2009.
I still cry when I think about it.
Did I really deserve to have a healthy baby? So many moms I know do not. So many people I love are struggling so much.
I’m furious about it. I’m furious that their daily lives include changing their 11-year-olds’ diapers and trying to stay safe when their child throws a violent tantrum.
No mom should have to be dealing with that.
Something is going desperately wrong in America.
I was invited to speak at the AutismOne conference in May 0f 2013.
That conference was amazing. Terrifying. Inspiring.
At AutismOne I met some members of a group called the Thinking Moms’ Revolution.
They have dogs in the fight.
They started out as 24 friends. Twenty three moms and one dad. They did what their doctors told them. They followed the current American pediatric protocol exactly as the mainstream would have them follow it. With disastrous results. These 24 brave souls, unlike me, do not have healthy children.
I bought three copies of their book.
The TMRs also started a blog focused on all kinds of children’s health issues.
They are people who make things happen.
They are people who learned the hard way that the system is broken.
They are brave women (and one man) who aren’t afraid to face the trolls. And who aren’t afraid to tell the truth.
Now the TMRs have got their fingers in all kinds of pies related to children’s health and autism.
Melanie’s son, Luke, is severely affected by autism, and Melanie, whose religious faith means a great deal to her, has written eloquently on the subject of churches and special-needs ministries. Her writings have touched a lot of people and helped many to understand the spiritual needs of families dealing with autism.
But Melanie isn’t just dealing with autism.
She had breast cancer a while back and seemed to be doing fine, till a resurgence of cancer was found in her hip last year.
I’m so mad.
I’m so mad I can’t even write this.
I’m mad at autism and I’m mad at cancer and I’m mad that a mama who is trying so hard and giving so much is suffering like this.
I hate cancer. Cancer stole my friend Amy’s daughter Whitney when she was only 18 years old. Cancer stole my grandmother.
FUCK YOU CANCER.
Melanie had surgery last year.
And now Melanie’s cancer has come back a third time.
She’s very sick now, and she’s in the hospital away from her husband, Tim, and their son.
Their finances have already been ravaged by cancer and autism treatments.
The Thinking Moms’ Revolution has set up a donation site to raise money to help their spiritual sister Melanie and her family defray the costs they are facing.
Since I’m a luddite and I didn’t want to pay GiveForward’s fees, I sent Melanie a check for $100.
It wasn’t enough enough.
No amount of money is enough.
But it’s something.
We need to STOP THE AUTISM EPIDEMIC.
Please do something.
Please tell everyone you know that autism is your problem too, whether your kid is on the spectrum or not.
That the current state of America’s health is unacceptable.
That we can no longer allow businesses and for-profit medicine to dictate the health of our children.
My four year old–that same one who was born healthy nearly five years ago–just woke up. Her small blond head is leaning against my left shoulder.
“She needs to go to bed, Mom! It’s after 11 p.m.” Her 15-year-old sister chastises me.
And now I’m sobbing. “I’m not wasting time on the internet,” I cry to my oldest daughter. “I’m not trying to ignore Leone. I just have to get this finished. My friend has cancer and her family needs help.”
“I’m glad you’re helping her, Mom,” my daughter says softly. “Don’t cry. I’ll put the baby back to bed.”